Sickle Cell – GRAAHI

Exercise Regimes and Benefits for African Americans with Sickle Cell Disease

October 26, 2023 by Barbara Lash

“Unleashing the Power of Exercise in the Fight Against Sickle Cell Disease”
The rhythm of African drums pulsating inthe background, the vibrant energy of a Zumba class in full swing, the serene focus of a yoga session, or the simple joy of a brisk walk in the park – exercise, in its many forms, is a celebration of life and vitality.
For African Americans, particularly those living with Sickle Cell Disease (SCD), this celebration takes on a profound significance.

SCD, a genetic blood disorder predominantly affecting individuals of African descent, presents unique challenges
that require tailored approaches to exercise and physical activity. This article delves into the world of exercise regimes suitable for mild, moderate, and severe stages of SCD, explores the physical and mental benefits of these activities, and highlights the cultural preferences and body types of African Americans to suggest exercises that resonate with this vibrant community. So, let’s embark on this journey of wellness, strength, and resilience, and discover how exercise can be a powerful ally in managing SCD.

Unlocking the Power of Mental Exercise: A Guide for African Americans with Sickle Cell Disease

October 26, 2023 by GRAAHI Editorial

Living with sickle cell disease can present unique challenges for African Americans. The physical symptoms and complications associated with the condition can take a toll on both the body and mind. While physical exercise is often emphasized for managing the disease, the power of mental exercise should not be overlooked. In this article, we will explore the importance of mental exercise for African Americans with sickle cell disease and how it can empower individuals to lead healthier and more fulfilling lives.

Benefits of mental exercise for African Americans with sickle cell disease

Mental exercise offers numerous benefits for individuals living with sickle cell disease. Firstly, it helps to alleviate stress and anxiety, which are common among sickle cell patients. By engaging in activities that require focus and concentration, individuals can experience a sense of calm and relaxation. Secondly, mental exercise can improve memory and

The importance of mental exercise for sickle cell patients

Sickle cell disease not only affects the physical well-being of individuals, but it can also impact their mental health. The constant pain, fatigue, and limitations can lead to feelings of frustration, anxiety, and depression. This is where mental exercise plays a crucial role. Engaging in activities that stimulate the mind, such as puzzles, reading, or learning new skills, can help divert attention from the physical discomfort and provide a sense of accomplishment and fulfillment. Mental exercise can improve cognitive function, boost mood, and enhance overall well-being for African Americans with sickle cell. Regular engagement in mentally stimulating activities can help sharpen the mind and promote mental agility. Lastly, mental exercise promotes a positive mindset and enhances overall well-being. It provides a sense of purpose and accomplishment, boosting self-esteem and confidence.

Types of mental exercises

There are various types of mental exercises that can be beneficial for African Americans with sickle cell. One popular option is solving puzzles, such as crosswords, Sudoku, or word searches. These activities challenge the brain and improve problem-solving skills. Another option is reading. Whether it’s books, magazines, or online articles, reading stimulates the mind. Learning new skills, such as playing a musical instrument, painting, or cooking, is also an excellent way to engage the mind and nurture creativity. Lastly, meditation and mindfulness exercises can help promote a sense of calm and well-being.

Incorporating mental exercise into daily routine

Incorporating mental exercise into the daily routine is crucial for sickle cell management. It is essential to set aside dedicated time for mental stimulation. This can be done by scheduling specific activities – at least one a day. Variety is key! Be adventurous in trying new things.

Effective mental exercises Tips:

Start with manageable activities: Begin with activities that are enjoyable and not too challenging. This will help build confidence and motivation.
Vary the activities: Engage in a variety of mental exercises to keep the mind stimulated and prevent boredom. Mix puzzles,
reading, and learning new skills for a well-rounded mental exercise routine.
Take breaks when needed: It is important to listen to the body and take breaks when necessary. Pushing through fatigue or pain can hinder the effectiveness of mental exercise..
Stay consistent: Consistency is key for reaping the benefits of mental exercise. Set realistic goals and commit to regular practice.

Empowering African Americans with sickle cell disease through mental exercise Mental exercise is a powerful tool for African Americans living with sickle cell disease. By engaging in activities that stimulate the mind, individuals can experience numerous benefits, including reduced stress, improved cognitive function, and enhanced overall well-being. It is crucial for sickle cell patients to incorporate mental exercise into their daily routines and seek support services that focus on mental health. By unlocking the power of mental exercise, African Americans with sickle cell can empower themselves to lead healthier, more fulfilling lives.

Resources and Support for mental exercise for African Americans with sickle cell disease Fortunately, there are various mental health resources available for sickle cell patients to address their unique needs. Mental health professionals, such as psychologists and psychiatrists, provide therapy, counseling, and psychiatric evaluations to help with emotional distress, depression, anxiety, and other mental health conditions. Engaging in support groups tailored specifically for sickle cell patients can be immensely beneficial as they create a sense of community and understanding among individuals facing similar challenges. The internet has greatly expanded access to mental health resources and support, including virtual chats and forums. Many hospitals and medical centers now recognize the importance of mental health support for sickle cell patients and have integrated mental health services into their care plans.

Remember, it is crucial to prioritize mental health support alongside the physical aspect of sickle cell disease to ensure holistic and effective sickle cell care/management!

Sickle cell patients need action to promote cures

October 26, 2023July 11, 2022 by GRAAHI Editorial

by Vanessa Greene

When our country comes together to solve a public health crisis, we can do remarkable things. Diseases that were once death sentences are now manageable conditions. We have created vaccines and therapies and drugs that once seemed impossible. Now, we need to channel this innovation into a group of patients who have been quietly suffering for too long: sickle cell patients.

The reality of the sickle cell crisis is glaring, and the statistics speak for themselves. The life expectancy for people with the most severe form of the disease is 30 years shorter than that of people without sickle cell. The rate of stroke in adults with sickle cell is three times higher than rates in African Americans of similar age without sickle cell, and these patients have the highest rate of return to the hospital within 30 days of discharge.

Sickle cell disease is the most common genetic disorder in the United States. It impacts one out of every 365 African American births and one out of every 16,300 Hispanic births. The sickle cell gene is present in an estimated 3 million Americans, all of whom could pass it onto their children. If two parents carry this gene, there is a 50% chance their child will inherit sickle cell disease. Unfortunately, because of insufficient data collection, countless Americans are unaware they have the sickle cell trait.

We are facing a public health crisis primarily affecting Black and brown communities — over 80% of sickle cell patients fall into this group — but it continues to receive inadequate attention from the medical community. We have known about sickle cell disease for over a century, yet the first sickle cell drug did not even hit the market until 2018. At present there are only a few available drugs on the market, and there is no cure.

We currently do not have enough medical providers who are trained to treat sickle cell disease, leaving too many patients with few options for care. Racial stereotypes add further barriers to care, as sickle cell patients looking for pain relief are often dehumanized as “drug seekers” who exaggerate their symptoms. One study found the mean wait time for sickle cell patients at the ER was over an hour, which can endanger lives and force patients to endure extreme pain flareups without treatment. This is over 25% longer than patients without sickle cell disease.

Of the 100,000 Americans suffering from sickle cell disease, nearly half rely on Medicaid for their insurance. As Medicaid coverage is decided by states, there are stark gaps in coverage around the country for sickle cell patients. All patients are deserving of the treatments they need, and we need to make sure they have access to every available drug and therapy, no matter their background or their insurance.

Right now, there are groundbreaking new developments in cell and gene-based therapies that could potentially cure sickle cell, but this means nothing if we do not get these treatments in the hands of every single patient as soon as they are available. The Centers for Medicare & Medicaid Services, the Food and Drug Administration, and the Department of Health and Human Services all have a crucial role to play here. We need leaders at these federal agencies to promote this innovation and coordinate with state policymakers and sickle cell stakeholders to ensure patients on Medicaid have access to all treatments.

If we come together, we can finally give these patients the treatment and care they have lacked for so long.

(From an oped in the Grand Rapids Business Journel, June 24, 2022)